Wednesday, December 16, 2015

Can a nobody write a serious book?

My current work in progress is a nonfiction reference book on rare genetic diseases. You can scroll down a bit to read about it.  I've gotten some feedback from folks who "don't want to discourage me" but who warn me that without being a doctor or some specialist I don't have a chance of this book taking off.  I beg to differ.

It's very easy these days for celebrities to get a book published.  They bring with them name recognition so that even if they are writing something off the topic of their own celebrity, people will still buy their book.  Hence the proliferation of children's books and how-to books by celebrities. And I acknowledge that having a name helps sell books.  I also understand that medical books need the gravitas that specialists in the field provide.

The problem is that no one - no celebrity and no medical specialist - is writing this book. There is no book.  There are numerous academic papers written by very credible scientists and doctors.  But there is no book.  There is information online, but a lot of it is old and invalidated by more recent research. What is needed is a kind of manual for families and quick reference for front-line doctors.

Do I believe this will be easy?  No.  I've been a writer all my life and I understand the kind of research and hard work this demands. I know such a work is needed and I know I am up to the task.  So to those who tell me it cannot be done, I say, watch me do it!

Thursday, December 3, 2015

The things we do for love

I really hate asking people to do things for me.  I'd rather walk through weeds or pay someone than ask someone to cut my grass, for example.  But there comes a time when one must ask for help and this is one of those times.  So here goes:



Today I am launching what is for me a labor of love and I am asking for your help. As many of you know, my beautiful grandson was born with a rare genetic disorder. A private FB group is currently the only support for families such as mine. Every day these parents go online looking for answers from other families. Every day I read about how little is known, how ignorant many doctors are about this, and now and then about a child who has died.
I decided to do something.
am writing a book to be used by both doctors and the families of those affected. It will include the latest research, list doctors and medical centers with experience in this, and provide a wealth of wisdom from the parents themselves. No such reference currently exists. It is an ambitious work and I need a publisher if I am to get this into the hands of front-line pediatricians and general practitioners, who typically have no experience with FODs. Publishizer allows me to offer the book for pre-sale and if I get sufficient pre-orders of the book, publishers will take notice.
So, I want you to order a book I haven't written yet that you don't need. My suggestion is that you order it and allow me to give it to one of the families affected. These families struggle not only with the emotional burden of having a sick child but also with the added expenses of seeing genetic specialists, travel to do so, special formulas, repeated hospitalizations, and other expenses. Of course, if you want it for yourself, I will be happy to send it to you.
You can read my book proposal here and place your order. I have 45 days to sell 250 copies minimum. I would like to pre-sell 1,000. So, please, if I have touched your life in any way, order my book and share this post. If you know me, you know I will do a great job. Thank you.
Publishizer link: https://publishizer.com/fatty-acid-oxidation-disorders-and…/