Today I am launching what is for me a labor of love and I am asking for your help. As many of you know, my beautiful grandson was born with a rare genetic disorder. A private FB group is currently the only support for families such as mine. Every day these parents go online looking for answers from other families. Every day I read about how little is known, how ignorant many doctors are about this, and now and then about a child who has died.
I decided to do something.
I am writing a book to be used by both doctors and the families of those affected. It will include the latest research, list doctors and medical centers with experience in this, and provide a wealth of wisdom from the parents themselves. No such reference currently exists. It is an ambitious work and I need a publisher if I am to get this into the hands of front-line pediatricians and general practitioners, who typically have no experience with FODs. Publishizer allows me to offer the book for pre-sale and if I get sufficient pre-orders of the book, publishers will take notice.
So, I want you to order a book I haven't written yet that you don't need. My suggestion is that you order it and allow me to give it to one of the families affected. These families struggle not only with the emotional burden of having a sick child but also with the added expenses of seeing genetic specialists, travel to do so, special formulas, repeated hospitalizations, and other expenses. Of course, if you want it for yourself, I will be happy to send it to you.
You can read my book proposal here and place your order. I have 45 days to sell 250 copies minimum. I would like to pre-sell 1,000. So, please, if I have touched your life in any way, order my book and share this post. If you know me, you know I will do a great job. Thank you.
Publishizer link: https://publishizer.com/fatty-acid-oxidation-disorders-and…/
Publishizer link: https://publishizer.com/fatty-acid-oxidation-disorders-and…/
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